Last Thursday was an eventful day to say the least. I went to see my gastroenterologist at Brigham and Women's. The plan was to talk about how Xeljanz wasn't working for me and how my health has steadily declined since Christmas. We discussed basically how every drug I've been on has not worked and we're still a ways away from the next drug being approved. Because of this I'm back on Imuran which is a chemotherapy drug. It's not pleasant and I probably won't feel any better for 2-3 months which is pretty fucking terrible. I'll get back to this though because the real attraction of the story was what happened next. Both my gastro and my primary care doctors wanted blood work. I had prepared for that but assumed I'd be able to do it at another location on the next day since that's what usually happens. My doctor wanted blood right away at the hospital. I hadn't had much water to drink yet and I hadn't eaten anything yet either. I thought it would be okay,get it done and leave. Once I got in the chair and the lady pulled out 8 tubes for my blood I knew it was going to be bad. I don't have problems getting blood taken since I've been having it done multiple times a month for 14 years but this was just a perfect storm from the start. I also have small rolling veins and it takes a true pro to get one on the first try so I got the needle in the arm and move it around until you hit one move which already made me queasy. I made it to tube 7 and then just full on passed out. I remember getting dizzy and super sweaty, they kept asking me my name and where we were. Then I remember people trying to move me and then I woke up on a reclined chair with a bag of ice on my neck. It was seriously a terrible ordeal and I just wanted to get out of there. While this was all happening my dad was in the car taking a nap.
Back to the Imuran. I haven't been on it for about 8 or so years and I hadn't had too much success. It doesn't hurt to try again the doctor says. After only one day on it I remembered why I couldn't take it. My nausea is out of control making it even more impossible for me to sleep. My bedtime has been 6am since last Friday because of it. I've also noticed my hair is shedding more but I'm going to not focus on that because stress will make it worse. It's time like these when I seriously contemplate throwing all these pills in the toilet and just taking my chances. Unfortunately the last time I did that I ended up in the hospital having my colon removed. I just get so tired of this whole dance. The side effects on some/most of these drugs makes me not think it's even worth it to take them. I'm currently on 11 pills a day and still I'm having to go to the bathroom twice during one meal.What happens when there are no more meds to try? What happens then? I guess I'll know soon enough. Currently watching: Home Movies P.S. I'll be writing for a website called ComicBuzz! Look for my first piece soon www.comicbuzz.com and look for them on Twitter and Facebook with the same handle. Here's a picture of me from 2004 with my very first kitty named Posey. I miss her.
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AuthorA closer to 30 than 25 female living with chronic illness. I've got an obsessive love for cats, Disney, video games and cats. My name is Alissa. Archives
August 2016
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